Well since my last chemo session, I think I have had one good night of sleep. Guess last night wasn't meant to be #2. I've been up since 2:50am and so here I sit, waiting patiently for the rest of the world to wake up too. ( or at least the birds anyways)
So the Family meeting I put together last Sunday went over without a hitch I think. Pretty sad that it takes an event such as this to put all the family in one room for the first time in about 4 years. Nevertheless, it all went well and everyone is now on the same page. Mission Accomplished!!
I've kind of stayed away from the world this week. I guess with the onset of my physical disabilities, I've felt kind of overwhelmed, sad, mad, angry, upset, ticked off....I think you get my point. That being said, please don't take it at all personally if I have not returned your call, message, text etc. I am just in need of some "me" time right now and I will be back soon.
On a brighter note, my ex-military friends have now worked a deal with WestJet to fly myself, Faith and a third party to our choice of either Disney Resort in Florida or California. Amazing friends I have!!! I just have to contact WestJet and away we go :) Brad Norman, you are a Godsend my friend :)
Like I said, please bare with me for the next little while. I will certainly still be checking my e-mail daily still, so if you want to drop a "hello", feel free to drop it there. All your words of encouragement still mean the world to me :) ed_mcdade@hotmail.com
My family and friends....I love you all.
Sincerely,
me
Wednesday, July 16, 2008
Saturday, July 12, 2008
July 12/2008
A very early good morning to you all:
Well the side effects of my chemotherapy have certainly not let me down this month! I am tired and yet cannot sleep. This has been the case every time I do chemo. My MRI has been postponed until July 28th at 5:30am. ( I swear the scheduling folks do not like me) . This I have been told is because of the fact that my last chemo session was delayed due to low blood platelet levels.
Since my last blog I have had to take a few measures to ensure my own safely to remain living alone here on the farm. I am now one of those"Help, I've fallen and can't get up" people with an in-home monitoring system that connects to Parkwood Hospital. I am trying to get used to using a "quad cane" also. Don't laugh, the name is only referring to the number of feet on the cane! I am also getting another hand rail installed on the stairs leading up to the bedrooms so that I have more stability going up and down the stairs. (Getting bored of falling on the stairs!) I am also waiting on a foot orthotic device to help with my "drop foot" or in plain English, my pain in the arse foot that drags behind me!! lol
Not sure if I mentioned it in my last blog but the condition is now beginning to affect my left arm as well. Not nearly as severe as my leg but I feel the same symptoms coming. I have planned a family meeting for this Sunday so that we can all be together at the same time and I can review my current state and what lies ahead down the road. My reasoning for this is just to make sure all of my family hears first-hand information...at the same time, straight from the horse's mouth. Yeah, insert the "Mr Ed, the talking Horse" jokes here! But seriously, I'm hoping this family meeting turns out to be a good thing and maybe even a bi-weekly or monthly event.
So physically, my body is beginning to let me down. Its frustrating beyond words, to explain how one feels when their mind is still full of life but their body is letting them down in so many ways. I never would have thought, at age 40, that I would be "side-lined" at my daughter's soccer games instead of being on the field, coaching and having fun with her and her team. Mentally I am feeling overwhelmed. Just as the saying goes: "So much to do, so little time". I am thinking a weekend away from the world is in order very soon!!!!
Still with good humour and a bum leg,
Ed
Well the side effects of my chemotherapy have certainly not let me down this month! I am tired and yet cannot sleep. This has been the case every time I do chemo. My MRI has been postponed until July 28th at 5:30am. ( I swear the scheduling folks do not like me) . This I have been told is because of the fact that my last chemo session was delayed due to low blood platelet levels.
Since my last blog I have had to take a few measures to ensure my own safely to remain living alone here on the farm. I am now one of those"Help, I've fallen and can't get up" people with an in-home monitoring system that connects to Parkwood Hospital. I am trying to get used to using a "quad cane" also. Don't laugh, the name is only referring to the number of feet on the cane! I am also getting another hand rail installed on the stairs leading up to the bedrooms so that I have more stability going up and down the stairs. (Getting bored of falling on the stairs!) I am also waiting on a foot orthotic device to help with my "drop foot" or in plain English, my pain in the arse foot that drags behind me!! lol
Not sure if I mentioned it in my last blog but the condition is now beginning to affect my left arm as well. Not nearly as severe as my leg but I feel the same symptoms coming. I have planned a family meeting for this Sunday so that we can all be together at the same time and I can review my current state and what lies ahead down the road. My reasoning for this is just to make sure all of my family hears first-hand information...at the same time, straight from the horse's mouth. Yeah, insert the "Mr Ed, the talking Horse" jokes here! But seriously, I'm hoping this family meeting turns out to be a good thing and maybe even a bi-weekly or monthly event.
So physically, my body is beginning to let me down. Its frustrating beyond words, to explain how one feels when their mind is still full of life but their body is letting them down in so many ways. I never would have thought, at age 40, that I would be "side-lined" at my daughter's soccer games instead of being on the field, coaching and having fun with her and her team. Mentally I am feeling overwhelmed. Just as the saying goes: "So much to do, so little time". I am thinking a weekend away from the world is in order very soon!!!!
Still with good humour and a bum leg,
Ed
Monday, July 7, 2008
July 7/2008
Good morning everyone:
As you can probably see by the time of this blog, I am up at the "crack of stupid" again, which if you've been following my blog, means that I am back on chemo again. Yesterday was day 3 of my session. My MRI date is getting closer now (July 13) and because of the way I have been feeling lately, has me a little bit concerned. Unfortunately, my walking has worsened. I am stumbling and tripping now due to lack of any control of my lower leg. Not sure how much longer I will be able to walk unassisted. That frustrates the hell out of me. I've also noticed other physical and mental control issues that have been affected lately.
I have gotten away from using Facebook and Messenger for the most part in the past few weeks just so that I can concentrate on other things. I do still check my e-mail however, so feel free to message me though there.
With the worsening of my condition also comes some hard choices that may need to be made such as moving from my home to a more suitable single floor location. I will be very sad to leave here if it comes to that. I love it out here in the country. It gives me the peace and tranquility I need and I don't think I'll ever be lucky enough to ever have such great landlords as Rob and Marilyn again.
I might be able to manage if I had a room mate here but so far, nothing like that has panned out. If I have to move, that will also present another dilemma....where do I move to?? St.Thomas or Tillsonburg. Not choices I want to have to make!!
Until next time....
Ed
As you can probably see by the time of this blog, I am up at the "crack of stupid" again, which if you've been following my blog, means that I am back on chemo again. Yesterday was day 3 of my session. My MRI date is getting closer now (July 13) and because of the way I have been feeling lately, has me a little bit concerned. Unfortunately, my walking has worsened. I am stumbling and tripping now due to lack of any control of my lower leg. Not sure how much longer I will be able to walk unassisted. That frustrates the hell out of me. I've also noticed other physical and mental control issues that have been affected lately.
I have gotten away from using Facebook and Messenger for the most part in the past few weeks just so that I can concentrate on other things. I do still check my e-mail however, so feel free to message me though there.
With the worsening of my condition also comes some hard choices that may need to be made such as moving from my home to a more suitable single floor location. I will be very sad to leave here if it comes to that. I love it out here in the country. It gives me the peace and tranquility I need and I don't think I'll ever be lucky enough to ever have such great landlords as Rob and Marilyn again.
I might be able to manage if I had a room mate here but so far, nothing like that has panned out. If I have to move, that will also present another dilemma....where do I move to?? St.Thomas or Tillsonburg. Not choices I want to have to make!!
Until next time....
Ed
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